Coiso.
"(...) So, you have a friend or loved one that is a special needs parent. Do you want to offer help or support but don’t know what you could possibly do? Honestly, to a special needs parent, just knowing that someone cares is really important. In fact, it’s so important, that I don’t think it can be overstated.
The first thing you should know is that typically, the special needs parent will never ask for help. Often times, they know how overwhelming theirs life and struggles can be and they don’t want to burden anyone. If they do ask you for help then it’s truly needed. One of the things the special needs parent does very well, aside from raising amazing but challenging children, is suffer in silence. They have become so dedicated to their child that they often times lose themselves in the process but rarely if ever complain about it. The special needs parent typically struggle with exhaustion, finances, time and just about everything else. (...)
One of the toughest parts of being a special needs parent is the feeling of isolation. Their child requires so much of their time, energy and undivided attention that they often times have little or no adult contact (aside from doctors and therapists). You could make plans to stop by for a visit. Many special needs parents will tell you that they would love to just talk to another adult. Please remember to call first as a surprise visit could just add to the stress by destabilizing or overstimulating their child.
Sometimes, by the end of the day, exhaustion is such that the thought of making dinner is simply to much.(...)
Things as simple as sending a card, email or text message, just to let them know you’re thinking about them could help them to find the strength to keep moving on a really bad day. (...)
Think about making arrangements to go over and spend some time with their child (if that’s something that would work). Educating yourself about Autism of whatever else the parent is dealing with is important for something like this. Not only will educating yourself help you relate to their child, but knowing that you took the time to learn about their child’s condition would mean a great deal to any special needs parent. (...)
The most critical thing you will be doing, is showing them that they are not alone. Sometimes just knowing that their are people who love and support you, standing in your corner, can mean more then you can possibly imagine.
Please remember that you don’t have to understand anything about Autism in order to show love, compassion and support to those touched by it."
in http://lostandtired.com/2011/04/22/how-you-could-help-a-special-needs-parent/
Eu sinceramente nunca senti que precisasse desse tratamento como mãe de uma criança especial... Confesso que tenho a sorte de ter amigos que nunca fizeram qq distinção com o meu filho e sempre nos trataram de forma perfeitamente normal...
ResponderEliminarMas sei que há pais que de facto entram num isolamento terrível por os que o rodeiam não estarem preparados para os entender...
Bjs
Estás a passar por uma fase muito negra e isso reflete-se em muitas coisas. É verdade que quem mais perto nos rodeia não nos dá o devido valor e que acha que tudo o que os nossos filhos têm são coisas da nossa cabeça. Hoje, passados 2 anos de um diagnóstico preto no branco e sei lá quanto trabalho e dinheiro, ainda tenho familiares a culparem-nos (qual mãe/pai frigorífico... Não devem ter olhos na cara porque as piolhas são uns cu de mimo que só visto) e a dizer que elas não têm nada... Enfim...
ResponderEliminarDestralha amiga, destralha. Ataca as tuas coisas preferidas, com ou sem birras pega no puto e dá uma volta. Respira fundo e vais ver que tudo acaba por passar. Mãe de filho com necessidades especiais ou não. E eu cá estarei para te ouvir, sim? Força aí.
Isso mesmo! Ainda hoje disse o mesmo à Daniela :) E quero o meu post com as coisas boas que o Diogo tem feito que me prometeste!
ResponderEliminar